The value of large-scale programmes in human genomics
Horn R. et al, (2025), European Journal of Human Genetics
Call for a fairer approach to authorship in publishing biomedical research.
Cheah PY. and Parker M., (2025), Communications medicine, 5
The Rare Therapies Launchpad: a pilot program for individualized medicines in the UK
O’Connor DJ. et al, (2025), Nature Medicine
Artificial intelligence for modelling infectious disease epidemics
Kraemer MUG. et al, (2025), Nature, 638, 623 - 635
Global health photography behind the façade of empowerment and decolonisation
Alenichev A. et al, (2024), Global Public Health, 19
Expanding the phenotype and genotype spectrum of TAOK1 neurodevelopmental disorder and delineating TAOK2 neurodevelopmental disorder.
Elkhateeb N. et al, (2024), Genetics in medicine : official journal of the American College of Medical Genetics, 27
Is anybody watching: A multi-factor motivational framework for educational video engagement
Parker MJ. et al, (2024), Computers and Education, 222
Equity and timeliness as factors in the effectiveness of an ethical prenatal sequencing service: reflections from parents and professionals.
Peter M. et al, (2024), Eur J Hum Genet
Rare disease genomic testing in the UK and Ireland: promoting timely and equitable access.
Ellard S. et al, (2024), Journal of medical genetics
Ethical implications of disparities in translation genomic medicine: from research to practice.
Suleman M. et al, (2024), Journal of medical ethics, 50, 435 - 436
Ethical and social implications of public-private partnerships in the context of genomic/big health data collection.
Horn R. et al, (2024), European journal of human genetics : EJHG
Large-scale evaluation of outcomes after a genetic diagnosis in children with severe developmental disorders.
Copeland H. et al, (2024), Genetics in medicine open, 2
Public health use of HIV phylogenetic data in sub-Saharan Africa: ethical issues
Jamrozik E. et al, (2023), BMJ Global Health, 8, e011884 - e011884
The importance of getting the ethics right in a pandemic treaty
Schaefer GO. et al, (2023), The Lancet Infectious Diseases
Monoallelic intragenic POU3F2 variants lead to neurodevelopmental delay and hyperphagic obesity, confirming the gene's candidacy in 6q16.1 deletions.
Schönauer R. et al, (2023), American journal of human genetics, 110, 998 - 1007
Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border
Khirikoekkong N. et al, (2023), PLOS Global Public Health, 3, e0001875 - e0001875
Invisibility in global health: A case for disturbing bioethical frameworks
Alenichev A. et al, (2023), Wellcome Open Research, 8, 191 - 191
Invisibility in global health: A case for disturbing bioethical frameworks
Alenichev A. et al, (2023)
Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison
Horn R. et al, (2022), European Journal of Human Genetics
Exome sequencing efficacy and phenotypic expansions involving esophageal atresia/tracheoesophageal fistula plus.
Sy MR. et al, (2022), American journal of medical genetics. Part A, 188, 3492 - 3504
Guardians and research staff experiences and views about the consent process in hospital-based paediatric research studies in urban Malawi: A qualitative study.
Gondwe MJ. et al, (2022), BMC medical ethics, 23
Online Courses Provide Robust Learning Gains and Improve Learner Confidence in the Foundational Biomedical Sciences
Pike A. et al, (2022), Medical Science Educator, 32, 1425 - 1432
Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service
Hill M. et al, (2022), NIHR Open Research, 2, 10 - 10
A Mixed-Methods Approach to Identify Farmers' Perception and Practices Regarding Antibiotic Use in Vietnam
Thu TTA. et al, (2022), SOCIAL SCIENCES-BASEL, 11
Power and Powerlessness in a Group Based Digital Story Telling Project-An Exploration of Community Perceptions of Health Concerns in Urban Malawi.
Nyirenda D. et al, (2022), Frontiers in public health, 10
SARS-CoV-2 challenge studies: ethics and risk minimisation
Bull S. et al, (2021), Journal of Medical Ethics, 47, e79 - e79
Taking it to the bank: the ethical management of individual findings arising in secondary research
Graham M. et al, (2021), Journal of Medical Ethics, 47, 689 - 696
Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review.
Walker A. et al, (2021), Ethics, medicine, and public health, 18
Should covid vaccination be mandatory for health and care staff?
Parker M. et al, (2021), BMJ (Clinical research ed.), 374
Grandparent caregiving in Cambodian skip‐generation households: Roles and impact on child nutrition
Schneiders ML. et al, (2021), Maternal & Child Nutrition, 17
Public involvement in the governance of population-level biomedical research: unresolved questions and future directions
Erikainen S. et al, (2021), Journal of Medical Ethics, 47, 522 - 525
Vaccine-enhanced disease: case studies and ethical implications for research and public health
Jamrozik E. et al, (2021), Wellcome Open Research, 6, 154 - 154
Should COVID-19 Vaccines Authorized for Emergency Use Be Considered "Essential" Medicines?
Smith MJ. et al, (2021), Health and human rights, 23, 145 - 150
The ethics of genomic medicine: redefining values and norms in the UK and France
Gaille M. and Horn R., (2021), European Journal of Human Genetics, 29, 780 - 788
An intersectional human rights approach to prioritising access to COVID-19 vaccines.
Sekalala S. et al, (2021), BMJ global health, 6
Immunity certification for COVID-19: ethical considerations.
Voo TC. et al, (2021), Bulletin of the World Health Organization, 99, 155 - 161
Mutation-specific pathophysiological mechanisms define different neurodevelopmental disorders associated with SATB1 dysfunction.
den Hoed J. et al, (2021), American journal of human genetics, 108, 346 - 356
Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania.
Bukini D. et al, (2021), International journal of neonatal screening, 7
Top five ethical lessons of COVID-19 that the world must learn.
Smith MJ. et al, (2021), Wellcome open research, 6
Influence of gender norms in relation to child's quality of care: follow-up of families of children with SCD identified through NBS in Tanzania.
Bukini D. et al, (2021), Journal of community genetics, 12, 143 - 154
Editorial - ethical practice and genomic research.
Seeley J. and Parker M., (2020), Global bioethics = Problemi di bioetica, 31, 164 - 168
Researcher and study participants’ perspectives of consent in clinical studies in four referral hospitals in Vietnam
Van Nuil JI. et al, (2020), BMC Medical Ethics, 21
Research ethics in context: understanding the vulnerabilities, agency and resourcefulness of research participants living along the Thai–Myanmar border
Khirikoekkong N. et al, (2020), International Health, 12, 551 - 559
Structural coercion in the context of community engagement in global health research conducted in a low resource setting in Africa.
Nyirenda D. et al, (2020), BMC medical ethics, 21