Publications

Public health use of HIV phylogenetic data in sub-Saharan Africa: ethical issues

Jamrozik E. et al, (2023), BMJ Global Health, 8, e011884 - e011884

The importance of getting the ethics right in a pandemic treaty

Schaefer GO. et al, (2023), The Lancet Infectious Diseases

Culturally responsive research ethics: How the socio-ethical norms of Arr-nar/Kreng-jai inform research participation at the Thai-Myanmar border

Khirikoekkong N. et al, (2023), PLOS Global Public Health, 3, e0001875 - e0001875

Invisibility in global health: A case for disturbing bioethical frameworks

Alenichev A. et al, (2023), Wellcome Open Research, 8, 191 - 191

A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 research and responses

Ngwenya N. et al, (2023)

Healthcare resource allocation decisions and non-emergency treatments in the aftermath of Covid-19 pandemic. How should children with chronic illness feature in prioritisation processes?

Lignou S. et al, (2023)

Invisibility in global health: A case for disturbing bioethical frameworks

Alenichev A. et al, (2023)

Vulnerability and agency in research participants' daily lives and the research encounter: A qualitative case study of participants taking part in scrub typhus research in northern Thailand.

Greer RC. et al, (2023), PloS one, 18

Managing expectations, rights, and duties in large-scale genomics initiatives: a European comparison

Horn R. et al, (2022), European Journal of Human Genetics

Guardians and research staff experiences and views about the consent process in hospital-based paediatric research studies in urban Malawi: A qualitative study.

Gondwe MJ. et al, (2022), BMC medical ethics, 23

Optimising Exome Prenatal Sequencing Services (EXPRESS): a study protocol to evaluate rapid prenatal exome sequencing in the NHS Genomic Medicine Service

Hill M. et al, (2022), NIHR Open Research, 2, 10 - 10

A Mixed-Methods Approach to Identify Farmers' Perception and Practices Regarding Antibiotic Use in Vietnam

Thu TTA. et al, (2022), SOCIAL SCIENCES-BASEL, 11

GLIDE Wellcome Open Research Gateway.

Kahn J. et al, (2022), Wellcome open research, 7

Power and Powerlessness in a Group Based Digital Story Telling Project-An Exploration of Community Perceptions of Health Concerns in Urban Malawi.

Nyirenda D. et al, (2022), Frontiers in public health, 10

SARS-CoV-2 challenge studies: ethics and risk minimisation

Bull S. et al, (2021), Journal of Medical Ethics, 47, e79 - e79

Taking it to the bank: the ethical management of individual findings arising in secondary research

Graham M. et al, (2021), Journal of Medical Ethics, 47, 689 - 696

Ethical Issues in Genetics and Infectious Diseases Research: An Interdisciplinary Expert Review.

Walker A. et al, (2021), Ethics, medicine, and public health, 18

Should covid vaccination be mandatory for health and care staff?

Parker M. et al, (2021), BMJ (Clinical research ed.), 374

Grandparent caregiving in Cambodian skip‐generation households: Roles and impact on child nutrition

Schneiders ML. et al, (2021), Maternal & Child Nutrition, 17

Public involvement in the governance of population-level biomedical research: unresolved questions and future directions

Erikainen S. et al, (2021), Journal of Medical Ethics, 47, 522 - 525

Vaccine-enhanced disease: case studies and ethical implications for research and public health

Jamrozik E. et al, (2021), Wellcome Open Research, 6, 154 - 154

Should COVID-19 Vaccines Authorized for Emergency Use Be Considered "Essential" Medicines?

Smith MJ. et al, (2021), Health and human rights, 23, 145 - 150

The ethics of genomic medicine: redefining values and norms in the UK and France

Gaille M. and Horn R., (2021), European Journal of Human Genetics, 29, 780 - 788

An intersectional human rights approach to prioritising access to COVID-19 vaccines.

Sekalala S. et al, (2021), BMJ global health, 6

Immunity certification for COVID-19: ethical considerations.

Voo TC. et al, (2021), Bulletin of the World Health Organization, 99, 155 - 161

Mutation-specific pathophysiological mechanisms define different neurodevelopmental disorders associated with SATB1 dysfunction.

den Hoed J. et al, (2021), American journal of human genetics, 108, 346 - 356

Perspectives on Building Sustainable Newborn Screening Programs for Sickle Cell Disease: Experience from Tanzania.

Bukini D. et al, (2021), International journal of neonatal screening, 7

Top five ethical lessons of COVID-19 that the world must learn.

Smith MJ. et al, (2021), Wellcome open research, 6

Influence of gender norms in relation to child's quality of care: follow-up of families of children with SCD identified through NBS in Tanzania.

Bukini D. et al, (2021), Journal of community genetics, 12, 143 - 154

Editorial - ethical practice and genomic research.

Seeley J. and Parker M., (2020), Global bioethics = Problemi di bioetica, 31, 164 - 168

Researcher and study participants’ perspectives of consent in clinical studies in four referral hospitals in Vietnam

Van Nuil JI. et al, (2020), BMC Medical Ethics, 21

Research ethics in context: understanding the vulnerabilities, agency and resourcefulness of research participants living along the Thai–Myanmar border

Khirikoekkong N. et al, (2020), International Health, 12, 551 - 559

Structural coercion in the context of community engagement in global health research conducted in a low resource setting in Africa.

Nyirenda D. et al, (2020), BMC medical ethics, 21

Data-Driven Unsustainability? An Interdisciplinary Perspective on Governing the Environmental Impacts of a Data-Driven Society

Lucivero F. et al, (2020), SSRN Electronic Journal

Ethics of instantaneous contact tracing using mobile phone apps in the control of the COVID-19 pandemic

Parker MJ. et al, (2020), Journal of Medical Ethics, 46, 427 - 431

Key Ethical Concepts and Their Application to COVID-19 Research

Dawson A. et al, (2020), PUBLIC HEALTH ETHICS, 13, 127 - 132

Third human challenge trial conference, Oxford, United Kingdom, February 6-7, 2020, a meeting report.

Pollard AJ. et al, (2020), Biologicals : journal of the International Association of Biological Standardization, 66, 41 - 52

A qualitative study on aspects of consent for genomic research in communities with low literacy.

Bukini D. et al, (2020), BMC medical ethics, 21

"Are we getting the biometric bioethics right?" - the use of biometrics within the healthcare system in Malawi.

Mwapasa M. et al, (2020), Global bioethics = Problemi di bioetica, 31, 67 - 80

Quantifying SARS-CoV-2 transmission suggests epidemic control with digital contact tracing

Ferretti L. et al, (2020), Science, 368

Fair Allocation of Scarce Medical Resources in the Time of Covid-19.

Emanuel EJ. et al, (2020), The New England journal of medicine, 382, 2049 - 2055

Quantifying SARS-CoV-2 transmission suggests epidemic control with digital contact tracing

Ferretti L. et al, (2020)

In emergencies, health research must go beyond public engagement toward a true partnership with those affected

Wright K. et al, (2020), Nature Medicine, 26, 308 - 309

Publisher Correction: In emergencies, health research must go beyond public engagement toward a true partnership with those affected

Wright K. and Parker M., (2020), Nature Medicine, 26, 441 - 441

Informed consent in genomic research and biobanking: taking feedback of findings seriously.

Tindana P. et al, (2020), Global bioethics = Problemi di bioetica, 31, 200 - 215

Stakeholder views on the acceptability of human infection studies in Malawi.

Kapumba BM. et al, (2020), BMC medical ethics, 21

Community, Ethics, and Homelessness

Parker M., (2020), ETHICS OF HOMELESSNESS: PHILOSOPHICAL PERSPECTIVES, 2ND EDITION, 343, 141 - 152

Ethical challenges in pathogen sequencing: a systematic scoping review.

Johnson S. and Parker M., (2020), Wellcome open research, 5

Use of broad consent and related procedures in genomics research: Perspectives from research participants in the Genetics of Rheumatic Heart Disease (RHDGen) study in a University Teaching Hospital in Zambia

Mweemba O. et al, (2020), Global Bioethics, 31, 184 - 199

What constitutes good ethical practice in genomic research in Africa? Perspectives of participants in a genomic research study in Uganda

Rutakumwa R. et al, (2020), Global Bioethics, 31, 169 - 183

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Publications